The Gift of Getting Older

Twinabetics with Dad, circa 1979

My sis and I recently celebrated our thirty-fifth birthdays. We’re identical twins, but our lives and personalities are quite different. She’s an artist and mom of three now living on the northern coast of California. I’m a writer and educator (and proud aunt) who has settled in the Midwest after living in Europe, SE Asia, and the East coast. She’s on her 27th year with Type 1 diabetes; I’m on my 24th. Aside from tiny traces of beginning retinopathy of the eyes (which does not affect my vision), we’re complication-free.

Which doesn’t mean diabetes doesn’t affect our lives (and the lives of those who love us).

It does.

Every. Single. Day.

Physiologically and emotionally, it’s always there.

Sometimes in the background, quietly affecting us. Sometimes all up our grill.

Like it or not, Type 1 diabetes is forever a part of our lives. We both advocate for accessible, high quality, life-sustaining care, supplies, and treatment for diabetics and others whose lives have been affected by chronic disease. Overall, we accept it for what it is, do what can be done (within reason) to minimize its effect on daily life, and keep on keepin’ on. What else can you do? Being alive sure beats the alternative!

And while I know age is just a number, it’s an important one. Not as important as other numbers I pay attention to, but noteworthy nonetheless. Turning 35 felt important. Caused me to take stock. Rethink some stuff. Change course a bit. Consider things.

Best of all has been the warmth and growth that comes with loving and being loved by others. I love well and am well-loved. I’m scared but anxious to start a little family of my own someday soon. And I’m grateful for what I’ve learned over the years–including the importance of gratitude and finding blessings where we can.

I encourage you to read John Kralik‘s 365 Days of Thank-Yous? It’s amazing what the practice of writing simple thank-you notes, for reasons big and small, can do.  After Kralik lost his job, his girlfriend, and his joie d’virve, he needed a shake-up. It took him a year and a half to write 365 thank-you notes to everyone from his children to the barista who remembered his name and order each morning. Paying attention to all the goodness in his world (and then acting on it) profoundly changed his attitude from one primarily made up of self-pity and frustration to one of optimism and sincere gratitude. He felt happier as a result, and the world around him reflected this back to him.

As a writer, I was skeptical. But I believe Kralik when he says his thank-yous weren’t arbitrary, half-hearted attempts to check-off a to-do list, nor were they done in service to a book deal.

They were genuine.

Handwritten.

And absolutely treasured.

After finishing the book, it struck me how simple but effective this practice might be.

Little else brightens my day like a handwritten note in my mailbox. I know I’m not the only one.

So I’m trying it.

I’ve used a similar exercise in my college and high school English courses, but it’s becoming a lost art.

I don’t know about you, but the addition of personal touches make a huge difference in my life. This is true whether we’re talking about interior design, gifts, art, writing, or business and marketing. And as useful as the virtual world can be, nothing can replace face-to-face contact and real, live human touch (even for misanthropic solitary writerly folks). Although emails from the heart are nice, receiving a tangible note is much nicer.

Hold-it-in-your-hand thank yous, pictures, and love notes are invaluable to me. I still sneak a little note in lunch sacks or loved ones’ luggage whenever I get the chance. Sure, it takes a little more time, but the pay-off is worth it. Same goes for leaving comments.

Thank you for taking time to write comments and visit this site. Blogs need readers after all. Writers need an audience. Helpers need people to help. And I know you’re busy. How we each use our time, energy, resources, and talents matter. These things make a difference. All the difference in the world sometimes, as it turns out.

S0 let me put my money where my mouth is and send you a note. Just email me with your name and a postal address, and I’ll send you one.  It’d make me happy to do so. I promise to never sell or use your information for anything other than sending you a handwritten thank you note!

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Top 5 Faux Pas People Make When Relating to Diabetics (& How to Avoid Them)

Diabetes can feel like a minefield. It’s tough to know what to do and say when dealing with sensitive topics like the health issues of those we love. The same is true for those we encounter only briefly in our day-to-day lives.

If, like me, you have loved ones whose been affected by diabetes, it can be difficult to know how best to approach the topic of diabetes with them.

I love a lot of diabetics. What can I say? We’re sweet as pie! But that doesn’t always make things easy. Like many of us, I make mistakes. When my twin was diagnosed with Type 1 at age eight, I didn’t know what it was and told all the kids at school that my sister was in the hospital because she had diarrhea. I thought that was what it was. I still haven’t lived that down!

At sixteen, I had my first serious boyfriend. He had Type 1 diabetes. By that time I did, too, but it was still really hard for me to watch him (not) take care of it. It wasn’t the reason we broke up, but it definitely put a strain on things. And my best friend has had Type 2 diabetes for years. Another dear friend of mine recently had to start taking insulin to help lower bloodsugar levels after a surprise A1C of 10+.

Ohhh, how I wish I had been more empathetic at times. Softer. I didn’t mean to, but I hurt them–and our relationship–by my misguided behaviors. I really really want you to avoid all that. Why not learn from my mistakes?

Caveat: Obviously, diabetics are not clones. While my twin sister and I share the same DNA, even we are not carbon-copies of each other–and handle our diabetes–and lives–differently. Still, I’m confident that avoiding the following faux pas will absolutely not harm you—or them–and will likely help you alleviate unwanted stress and unnecessary difficulties in your relationships with the diabetics in your life.

While I can only speak for myself, when it comes to building trust and intimacy, avoiding these five things would definitely tip the odds in (y)our favor:

  • 1.) Operating from an “I am here to scare you straight!” mentality.

While I love The Office, who wants a real life Prison Mike in their lives? Most of us with a chronic illness don’t respond well to scare tactics as a form of motivation. Think about it: Would you appreciate hearing about your friend’s grandmother who lost her foot because she had “the really bad kind of diabetes?” Would you want to share more or less about your challenges with diabetes if your colleagues or partner kept bringing up how Grandma wouldn’t have diabetes if only she wouldn’t have gone to Denny’s so much? (hint: I don’t think so!)

Hint: Just ASK.

By admitting you’re not sure what to say or how to approach their diabetes, you’re showing you care, and admitting you don’t have all the answers. You show you’re receptive to honoring their feelings and understanding their personal approach to diabetes (even if you don’t always agree with it). While the golden rule is good to keep in mind, my philosophy is not “treat people how you’d like to be treated, rather, treat people with diabetes how they would like to be treated. And the best way to honor this is to ask.

  • 2.) Asking “Should you really eat that?”

Um, really? Should you?

Diabetics are not so different from non-diabetics. We’re more alike than different. It’d help to remember that. Be honest, you know better than having that third slice of pizza, but sometimes you do it anyway. And it’s not my place to judge you for that–nor would I. So why judge others unnecessarily? Who wins in that scenario?

Asking a diabetic if they should eat something is not only unhelpful, it comes across as rude and is definitely misguided. When faced with judgments loosely disguised as questions, I often respond with “Are you asking that for your benefit or for mine?”

Hint: Ask yourself that same thing before launching into a diatribe on the evils of pastries. Putting the diabetic on the defensive is never the way to go. Don’t make assumptions (ass/u/me)! I count carbs and have an insulin pump and test my bloodsugar 5-10 times a day, and while coffee and a doughnut may not be the best breakfast choice, I can cover the carbs in the doughnut rather well with my pump, and I make sure to keep an eye on my bloodsugar levels.

  • 3.)  “You’re really moody. Is your bloodsugar low? Maybe you should grab a candy bar!”

As a diabetic, this one comes up a lot for me. From my mom especially, believe it or not. While it’s true that spikes and dips in glucose levels can affect mood, framing your concern about a diabetic’s behavior in such a way is not only insulting, it’s counter-productive.

Hint: Putting someone on the defensive will rarely, if ever, produce the results you want. If you’re frustrated or genuinely concerned, remember it’s to your advantage and theirs to come from a place of love.

For me, this most often translates into the person without diabetes not taking a low bloodsugar seriously because I appear to be fine.

Hint: We are not fine! Hypoglycemia is a life-threatening occurrence and one that happens more often than a Type 1 diabetic would like. It’s tricky: not all hypos are created equally. Sometimes I barely feel a low—other times I’m shaking and sweaty and fuzzy-brained and am operating on only one cylinder.

Better safe than sorry. Bring the person with diabetes a Coke or OJ. Swedish Fish work especially well for some reason. This is one time when it’s worth it to stay vigilant and insist the diabetic eat/drink something and re-test in no more than 15 minutes. Help ‘em out.

Hint: Don’t let them fall asleep without knowing their bloodsugar is stable. Stay with them. Please don’t hold their poor or baffling behavior against them. It’s almost always the low bloodsugar making them loopy, not some inherent character flaw.

  •     5. “You can’t go wrong with sugar-free!” (Wrong-ola!)

Hint:  Pay attention to the carb count, not just the sugar content.

I personally detest almost all sugar-free food products. Not gum. Not iced-tea. Not soda. But chocolate? Eiey! Not only does it taste like pud, they tend to be relatively high in calories and higher in carbs than the original. Plus, they’re filled with a bunch of fake foodstuffs that tend to leave you on the toilet for the majority of the day if you eat more than one.

Hint: Avoid giving sugar-free chocolate/candy/cookies unless you know they like them. It’s healthier to have a little of the real deal than to gorge on sugar-free foods that are high carb and high cal.

So there you go! Though diabetics expect to face confusion and misinformation, it helps when at least some folks get it right. Failing that, it matters that you’re trying. Kindness and empathy go a long way. Diabetics know most people in the world do not have diabetes. We know it’s easy to be confused by all the half-truths out there. Sometimes, we’re just as confused—especially in the beginning!

We may not always act like it, but we know you’re doing your best. We are doing our best, too. You won’t do things perfectly. Neither will we. Still, I might hug you just a little bit closer for asking about things in an informed and loving way.

What faux pas should others avoid? What are YOUR Golden Rules? Let me know!

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